“We are aware of the rarity” event organized by Acıbadem University Rare Diseases Club took place at our university on February 25, 2020.

As part of the event, the ACU Rare Diseases Club hosted the Tay-Sachs Sandhoff Charity Association to raise awareness of lysosomal rare diseases and to share knowledge and experience about two of these diseases, Tay-Sachs and Sandhoff.

The event started with an informative presentation by Sema Özel, vice president of the Tay-Sachs Sandhoff Charity Association, about the genetic infrastructure of Tay-Sachs and Sandhoff diseases, and continued with Yasin Özel, President of the Tay-Sachs Sandhoff Charity Association, addressing the Association process. In the last part, Yasin Özel and Sema Özel shared their experiences about Tay-Sachs disease

Last Updated At: 09/03/2020
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