The campaign launched by the NGO Committee for Rare Diseases, Rare Diseases International (RDI) and EURORDIS-Rare Diseases Europe and all their members, calling for the adoption a UN General Assembly Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their families in 2021.
The overarching goal of the campaign is
to recognise that PLWRD are an overlooked population requiring immediate and
urgent attention, and global and national policies that address their needs and contribute to achieving the UN 2030 Agenda, the Sustainable Development Goals and their pledge to ‘leave no one behind’.
For further reading please go to: https://www.rarediseasesinternational.org/resolution4rare/