The Rare Diseases Network, which was formed by the association of nine different rare diseases, was established on 21.12.2018 in order to make the voices of the patients and their relatives struggling with rare diseases, to draw attention to the problems they experienced and to produce solutions. Rare Diseases Network aims to increase the awareness of rare diseases and increase the life and quality of individuals with rare diseases. Representatives of the core founding associations held a press conference on 26 February 2019 and gave information about the establishment and listed their demands.

Last Updated At: 26/02/2019
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