Registery deadline is June 7th 2019 for Information Day for Rare Disease Researches!

In order to create a comprehensive and sustainable rare disease research ecosystem in our country, Information Day for Rare Disease Researches!will be held on June 11, 2019 at ACURare, Acıbadem University Kerem Aydınlar Campus by TÜBİTAK Bilateral and Multiple Relations Department.

Establishing the researcher-clinician-patient connection on the information day where rare diseases patient organizations and scientists, researchers and clinicians who will conduct research in this field will come together; conducting joint scientific and clinical research in rare disease research; Networking will be conducted for rare diseases patient organizations to take an active role in research projects.

In addition, the European Joint Program on Rare Diseases (EJP RD -, which is a partner of TUBITAK and supported by the European Commission, will be introduced which will be opened in 2020 and will be given information about the international call for joint research projects.

In the afternoon part of the Information Day, research projects will be identified, which will encourage collaboration between patients' organizations and researchers and clinicians, and which will prioritize our country's rare diseases research.

Who may attend?

Rare Diseases Research Information Day is attended by representatives and members of patient organizations active in the field of rare diseases, scientists, researchers, clinicians and patient rights advocates.

Click for the program.

Registry deadline: June 7, 2019

Click for registry.

Last Updated At: 07/06/2019
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